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    Description and psychometric properties of the CP QOL-Teen: A quality of life questionnaire for adolescents with cerebral palsy

    Access Status
    Fulltext not available
    Authors
    Davis, E.
    Mackinnon, A.
    Davern, M.
    Boyd, Roslyn
    Bohanna, I.
    Waters, E.
    Graham, H.
    Reid, S.
    Reddihough, D.
    Date
    2013
    Type
    Journal Article
    
    Metadata
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    Citation
    Davis, E. and Mackinnon, A. and Davern, M. and Boyd, R. and Bohanna, I. and Waters, E. and Graham, H. et al. 2013. Description and psychometric properties of the CP QOL-Teen: A quality of life questionnaire for adolescents with cerebral palsy. Research in Developmental Disabilities. 34 (1): pp. 344-352.
    Source Title
    Research in Developmental Disabilities
    DOI
    10.1016/j.ridd.2012.08.018
    ISSN
    0891-4222
    School
    School of Occupational Therapy and Social Work
    URI
    http://hdl.handle.net/20.500.11937/13891
    Collection
    • Curtin Research Publications
    Abstract

    To assess the measurement properties of a new QOL instrument, the Cerebral Palsy Quality of Life Questionnaire-Teen (CP QOL-Teen), in adolescents with cerebral palsy (CP) aged 13-18 years, examining domain structure, reliability, validity and adolescent-caregiver concordance. Based on age, 695 eligible families were invited to participate by mail. Questionnaires were returned by 112 primary caregivers (71.8% of questionnaires sent). 87 adolescents aged 12-18 years also completed the questionnaires. CP QOL-Teen, generic QOL instruments (KIDSCREEN, Pediatric Quality of Life Inventory), functioning (Gross Motor Function Classification System) and a condition-specific instrument (PedsQL-CP) were used. Principal components analysis produced seven scales: wellbeing and participation; communication and physical health; school wellbeing; social wellbeing; access to services; family health; feelings about functioning. Cronbach's alphas for the derived scales ranged from 0.81 to 0.96 (primary caregiver report) and 0.78 to 0.95 (adolescent report). Test-retest reliability (4 weeks) ranged from 0.57 to 0.88 for adolescent self-report and 0.29 to 0.83 for primary caregiver report. Moderate correlations were observed with other generic and condition specific measures of QOL, indicating adequate construct validity. Moderate correlations were observed between adolescent self-report and primary caregiver proxy report. This study demonstrates acceptable psychometric properties of both the adolescent self-report and the primary caregiver proxy report versions of the CP QOL-Teen.

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