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    Women’s Experience of Telehealth Cancer Genetic Counseling

    Access Status
    Fulltext not available
    Authors
    Zilliacus, E.
    Meiser, B.
    Lobb, Elizabeth
    Kirk, J.
    Warwick, L.
    Tucker, K.
    Date
    2010
    Type
    Journal Article
    
    Metadata
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    Citation
    Zilliacus, Elvira M. and Meiser, Bettina and Lobb, Elizabeth A. and Kirk, Judy and Warwick, Linda and Tucker, Katherine. 2010. Women’s Experience of Telehealth Cancer Genetic Counseling. Journal of Genetic Counseling. 19 (5): pp. 463-472.
    Source Title
    Journal of Genetic Counseling
    DOI
    10.1007/s10897-010-9301-5
    ISSN
    1059-7700
    School
    WA Centre for Cancer and Palliative Care (WACCPC)
    URI
    http://hdl.handle.net/20.500.11937/14970
    Collection
    • Curtin Research Publications
    Abstract

    Telegenetics offers an alternative model of delivering genetic counseling to rural and outreach areas; however there is a dearth of qualitative research into the patient’s experience. Twelve women who had received telemedicine genetic counseling for hereditary breast and/or ovarian cancer (HBOC) within the previous 12 months participated in a semi-structured telephone interview. The interview explored women’s experience with telegenetics, satisfaction, perceived advantages and disadvantages and quality of the interaction with their genetic professionals. Overall women were highly satisfied with telegenetics. Telegenetics offered them convenience and reduced travel and associated costs. The majority of women described feeling a high degree of social presence, or rapport, with the off-site genetic clinician. One woman with a recent cancer diagnosis, reported that telemedicine was unable to meet her needs for psychosocial support. This finding highlights the need to be mindful of the psychosocial support needs of women with a recent diagnosis being seen via telegenetics. Patients attending for HBOC genetic counseling are generally highly satisfied with the technology and the interaction. Care should be taken, however, with patients with more complex psychosocial needs.

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