Reducing the psychological distress of family caregivers of home-based palliative care patients: Short-term effects from a randomised controlled trial.
MetadataShow full item record
Background: Palliative care is expected to incorporate comprehensive support for family caregivers given that many caregivers suffer psychological morbidity. However, systematically implemented evidence-based psychological support initiatives are lacking. Aim: The objective of this study was to prepare caregivers for the role of supporting a patient with advanced cancer receiving home-based palliative care by offering a one-to-one psycho-educational intervention. We hypothesised that primary family caregivers who participated in the intervention would report decreased psychological distress (primary outcome), fewer unmet needs and increased levels of perceived preparedness, competence and positive emotions. Methods: A three-arm randomised controlled trial was conducted comparing two versions of the intervention (one face-to-face visit versus two visits) plus standard care to a control group (standard care) across four sites in Australia.Results: A total of 298 participants were recruited; 148 were in the Control condition, 57 in Intervention 1 (one visit) and 93 in Intervention 2 (two visits). Relative to participants in the control group; the psychological well-being of participants in the intervention condition was improved by a small amount but non-significantly. No significant reduction in unmet needs or improvements in positive aspects of caregiving amongst the intervention group were identified. However, the intervention demonstrated significant improvements in participants' levels of preparedness and competence for Intervention 2. Conclusion/implications: This research adds to accumulating body of evidence demonstrating that relatively short psycho-educational interventions can enable family caregivers to feel more prepared and competent in the role of supporting a dying relative. Further investigation is required to determine the longer term outcomes of such interventions.
Showing items related by title, author, creator and subject.
The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trialAoun, Samar; Grande, G.; Howting, Denise; Deas, Kathy; Toye, Christine; Troeung, L.; Stajduhar, K.; Ewing, G. (2015)Family caregiving towards the end-of-life entails considerable emotional, social, financial and physical costs for caregivers. Evidence suggests that good support can improve caregiver psychological outcomes. The primary ...
Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the Carer Support Needs Assessment ToolAoun, Samar; Deas, K.; Kristjanson, L.; Kissane, D. (2017)Family caregivers of people with motor neurone disease (MND) experience adverse health outcomes as a result of their caregiving experience. This may be alleviated if their support needs are identified and addressed in a ...
Outcomes for family carers of a nurse-delivered hospital discharge intervention for older people (the Further Enabling Care at Home Program): Single blind randomised controlled trialToye, Christine; Parsons, R.; Slatyer, Susan; Aoun, Samar; Moorin, Rachael; Osseiran-Moisson, R.; Hill, Keith (2016)Background: Hospital discharge of older people receiving care at home offers a salient opportunity to identify and address their family caregivers’ self-identified support needs. Objectives: This study tested the hypothesis ...