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    Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders

    Access Status
    Fulltext not available
    Authors
    Haas, K.
    Costley, D.
    Falkmer, Marita
    Richdale, A.
    Sofronoff, K.
    Falkmer, Torbjorn
    Date
    2016
    Type
    Journal Article
    
    Metadata
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    Citation
    Haas, K. and Costley, D. and Falkmer, M. and Richdale, A. and Sofronoff, K. and Falkmer, T. 2016. Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders. 46 (5): pp. 1793-1805.
    Source Title
    Journal of Autism and Developmental Disorders
    DOI
    10.1007/s10803-016-2708-6
    ISSN
    0162-3257
    School
    School of Occupational Therapy and Social Work
    URI
    http://hdl.handle.net/20.500.11937/22149
    Collection
    • Curtin Research Publications
    Abstract

    Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.

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