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    The support needs of terminally ill people living alone at home: a narrative review

    202582_134173_Aoun_Breen_Howting_2014_HPBM.pdf (245.0Kb)
    Access Status
    Open access
    Authors
    Aoun, Samar
    Breen, Lauren
    Howting, Denise
    Date
    2014
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Aoun, S. and Breen, L. and Howting, D. 2014. The support needs of terminally ill people living alone at home: a narrative review. Health Psychology & Behavioural Medicine. 2 (1): pp. 951-969.
    Source Title
    Health Psychology and Behavioral Medicine
    DOI
    10.1080/21642850.2014.933342
    ISSN
    2164-2850
    School
    School of Nursing and Midwifery
    Remarks

    This article is published under the Open Access publishing model and distributed under the terms of the Creative Commons Attribution License http://creativecommons.org/licenses/by/3.0/ Please refer to the licence to obtain terms for any further reuse or distribution of this work.

    URI
    http://hdl.handle.net/20.500.11937/22782
    Collection
    • Curtin Research Publications
    Abstract

    Context: The number of terminally ill people who live alone at home and without a caregiver is growing and exerting pressure on the stretched resources of home-based palliative care services. Objectives: We aimed to highlight the unmet support needs of terminally ill people who live alone at home and have no primary caregiver and identify specific models of care that have been used to address these gaps. Methods: We conducted a narrative review of empirical research published in peer-reviewed journals in English using a systematic approach, searching databases 2002–2013. This review identified 547 abstracts as being potentially relevant. Of these, 95 were retrieved and assessed, with 37 studies finally reviewed. Results: Majority of the studies highlighted the reduced likelihood of this group to be cared for and die at home and the experiences of more psychosocial distress and more hospital admissions than people with a primary caregiver. Few studies reported on the development of models of care but showed that the challenges faced by this group may be mitigated by interventions tailored to meet their specific needs. Conclusion: This is the first review to highlight the growing challenges facing community palliative care services in supporting the increasing number of people living alone who require care. There is a need for more studies to examine the effectiveness of informal support networks and suitable models of care and to provide directions that will inform service planning for this growing and challenging group.

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