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    The experiences of mothers of children with autism: Managing multiple roles

    Access Status
    Fulltext not available
    Authors
    Safe, Anneleise
    Joosten, Annette
    Molineux, Matthew
    Date
    2012
    Type
    Journal Article
    
    Metadata
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    Citation
    Safe, Anneleise and Joosten, Annette and Molineux, Matthew. 2012. The experiences of mothers of children with autism: Managing multiple roles. Journal of Intellectual & Developmental Disability. 37 (4): pp. 294-302.
    Source Title
    Journal of Intellectual & Developmental Disability
    DOI
    10.3109/13668250.2012.736614
    ISSN
    13668250
    URI
    http://hdl.handle.net/20.500.11937/25777
    Collection
    • Curtin Research Publications
    Abstract

    Background: Mothers of children with autism experience poorer health and wellbeing compared to mothers of children with other disabilities or typically-developing children. This qualitative phenomenological study aimed to explore the daily life experiences of mothers of children with autism, and the strategies they use to manage their roles, their emotions, and their child’s behaviours. Method: In-depth interviews were conducted with 7 mothers and the data were analysed using interpretative phenomenological analysis. Results: Findings revealed that the mothers were challenged by the demands of their multiple roles while dealing with the paradox of accepting their child for who they were, and at the same time also desiring their typical growth and development. However, the mothers reported various strategies they used to manage their roles, their emotions, and their child’s behaviours. Conclusions: The findings indicate that health professionals working with these families must support mothers in managing various aspects of their lives, including those not directly related to their child with autism.

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