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    The Lililwan project: neurodevelopmental outcomes and fetal alcohol spectrum disorders in remote Australian aboriginal children

    Access Status
    Fulltext not available
    Authors
    Fitzpatrick, J.
    Latimer, J.
    Carter, M.
    Oscar, J.
    Olson, H.
    Lucas, B.
    Doney, Robyn Michelle
    Salter, C.
    Watkins, R.
    Elliott, E.
    Date
    2015
    Type
    Journal Article
    
    Metadata
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    Citation
    Fitzpatrick, J. and Latimer, J. and Carter, M. and Oscar, J. and Olson, H. and Lucas, B. and Doney, R.M. et al. 2015. The Lililwan project: neurodevelopmental outcomes and fetal alcohol spectrum disorders in remote Australian aboriginal children. Drug and Alcohol Review. 34 (S1): pp. 25-26.
    Source Title
    Drug and Alcohol Review
    ISSN
    0959-5236
    School
    School of Public Health
    Remarks

    Presented at APSAD 2015 Conference, 8–11 November 2015, Perth, Western Australia

    URI
    http://hdl.handle.net/20.500.11937/26730
    Collection
    • Curtin Research Publications
    Abstract

    Introduction and Aims: Aboriginal leaders in remote Western Australian communities, concerned about the impact of high levels of alcohol consumption in pregnancy, invited researchers to collaborate in The Lililwan Project with the objective to determine prevalence of FASD. Design and Methods: Using active ascertainment, children born in 2002/2003, living in the Fitzroy Valley in 2010/2011, were identified (n=134). In interviews, 127 (95%) consenting caregivers provided social, biomedical and antenatal data including alcohol use, with birth outcomes derived from medical records. Interdisciplinary assessments were conducted for 108 (81%) children. Prenatal alcohol exposure was objectively quantified. Conditions on the FASD spectrum (Fetal Alcohol Syndrome (FAS), partial FAS, and Neurodevelopmental Disorder – Alcohol Exposed (ND-AE)) were diagnosed using Canadian FASD Diagnostic guidelines with slight modification. Management plans were prepared for each child. Results: Alcohol was used in 55% of 127 index pregnancies. Of women who drank, 87% drank at high-risk levels and 88% drank in the first trimester. In 108 children assessed, FAS or pFAS was diagnosed in 13 (120 per 1000 (95% CI 70-196), all with confirmed prenatal alcohol exposure. Of these, 69% had microcephaly, 85% had growth deficiency, and all had facial dysmorphology and CNS impairment in 3-8 domains. Using conservative diagnostic criteria, 8 more children were diagnosed with ND-AE. Overall FA SD prevalence was 194 per 1000 (95% CI 130-280). Additional children considered at high risk for neurodevelopmental difficulties were referred for future evaluation. Discussion and Conclusions: FASD prevalence was higher than reported previously in Australia and amongst the highest worldwide. Alcohol use in pregnancy remains a major public health challenge throughout Australia, particularly in r emote communities with high rates of alcohol consumption. Aboriginal community-led initiatives for FASD prevention and FASD intervention must be supported.

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