Tracing patients on antiretroviral treatment lost-to-follow-up in an urban slum in India
dc.contributor.author | Errol, L. | |
dc.contributor.author | Isaakidis, P. | |
dc.contributor.author | Zachariah, R. | |
dc.contributor.author | Ali, Mohammed | |
dc.contributor.author | Pilankar, G. | |
dc.contributor.author | Maurya, S. | |
dc.contributor.author | Geraets, Claudia | |
dc.date.accessioned | 2017-01-30T13:51:32Z | |
dc.date.available | 2017-01-30T13:51:32Z | |
dc.date.created | 2012-03-01T20:00:51Z | |
dc.date.issued | 2012 | |
dc.identifier.citation | Errol, Lisa and Isaakidis, Petros and Zachariah, Rony and Ali, Mohammed and Pilankar, Gurudas and Maurya, Sanjana and Geraets, Claudia. 2012. Tracing patients on antiretroviral treatment lost-to-follow-up in an urban slum in India. Journal of Advanced Nursing. | |
dc.identifier.uri | http://hdl.handle.net/20.500.11937/35747 | |
dc.identifier.doi | 10.1111/j.1365-2648.2011.05934.x | |
dc.description.abstract |
Aim: This article describes a cooperative initiative between an HIV-clinic and non-government organization network providing lost-to-follow-up tracing and delayed appointment follow-up of patients on antiretroviral treatment. Background: Loss-to-follow-up among patients on antiretroviral treatment is a major challenge in resource-constrained settings. A model of cooperation between a Médecins Sans Frontières HIV-clinic and a non-governmental-organization network was piloted in a Mumbai slum. A steady decline in delayed appointments and loss-to-follow-up was observed over 4 years. Design: Mixed method study. Methods: A study conducted in January 2011 explored potential reasons for declining loss-to-follow-up-rates. A retrospective, quantitative analysis of patient data was undertaken complemented by 22 semi-structured interviews, four focus-group discussions to explore patients’ and providers’ perceptions of tracing activities. Results/findings: The clinic loss-to-follow-up-rate has steadily declined from mid-2008–2011. Thirty-eight (4•6%) of 819 patients registered during the period were lost-to-follow-up with most lost during the first year. Rates of loss-to-follow-up between 0•3–2•4% were observed over the last 2 years. Phoning the day before an appointment was perceived as the most useful intervention to avoid missing appointments. The analysis revealed a widespread fear of forced disclosure by patients during home visits.Conclusions: The low loss-to-follow-up-rate cannot be attributed to the network tracing activities alone. Phoning before appointments may result in fewer delayed appointments and prevent loss-to-follow-up. Home visits should be a last resort method of patient tracing because of the risk of HIV-status disclosure and the opportunity of discrimination from family and neighbours. | |
dc.publisher | Blackwell Publishing Ltd | |
dc.subject | HIV/AIDS | |
dc.subject | loss-to-follow-up | |
dc.subject | discrimination | |
dc.subject | patient tracing | |
dc.subject | HIV disclosure | |
dc.subject | resource-limited settings | |
dc.subject | nursing | |
dc.title | Tracing patients on antiretroviral treatment lost-to-follow-up in an urban slum in India | |
dc.type | Journal Article | |
dcterms.source.issn | 03092402 | |
dcterms.source.title | Journal of Advanced Nursing | |
curtin.department | School of Nursing and Midwifery | |
curtin.accessStatus | Fulltext not available |