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    Caring for someone with high-grade glioma: a time of rapid change for caregivers

    132488_132488.pdf (94.97Kb)
    Access Status
    Open access
    Authors
    McConigley, Ruth
    Halkett, Georgia
    Lobb, Elizabeth
    Nowak, A.
    Date
    2010
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    McConigley, Ruth and Halkett, Georgia and Lobb, Elizabeth and Nowak, Anna. 2010. Caring for someone with high-grade glioma: a time of rapid change for caregivers. Palliative Medicine. 24 (5): pp. 473-479.
    Source Title
    Palliative Medicine
    DOI
    10.1177/0269216309360118
    ISSN
    02692163
    Faculty
    Faculty of Health Sciences
    Nursing and Midwifery
    Western Australian Centre for Cancer and Palliative Care (WACCP)
    School
    WA Centre for Cancer and Palliative Care (WACCPC)
    Remarks

    The final, definitive version of this paper has been published in Palliative Medicine, July 2010 by SAGE Publications Ltd, All rights reserved. © The Authors, 2010.

    URI
    http://hdl.handle.net/20.500.11937/36813
    Collection
    • Curtin Research Publications
    Abstract

    Patients diagnosed with high-grade gliomas have a poor prognosis and limited life expectancy, and often experience rapid decline in function. Caring for a patient with high-grade glioma is particularly stressful because caregivers are faced not only with cancer-related caregiving issues, but also issues relating to caring for someone with cognitive impairment. This study aimed to articulate the experiences of family caregivers of people diagnosed with high-grade glioma and to describe their information and support needs. A grounded theory method was adopted. Twenty-one family caregivers of people with high-grade glioma were interviewed using a semi-structured interview guide. A constant comparison method of data analysis was employed. A central theme, A Time of Rapid Change and two sub-themes, Renegotiating Relationships and Learning to be a Caregiver, emerged to describe the experiences of participants. Caregiving was characterised by numerous role and life changes from the moment of diagnosis. Caregivers in this study reported experiences similar to those described by caregivers of people with other cancers. What differed for this group was the rapidity of change and the need for immediate information and support to assist with caring for a person with high-grade glioma.

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