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    Informing the development of an online self-management program for men living with HIV: a needs assessment

    213115_141289_Informing_the_development_of_an_online.pdf (220.5Kb)
    Access Status
    Open access
    Authors
    Millard, T.
    McDonald, K.
    Elliott, J.
    Slavin, S.
    Rowell, S.
    Girdler, Sonya
    Date
    2014
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Millard, T. and McDonald, K. and Elliott, J. and Slavin, S. and Rowell, S. and Girdler, S. 2014. Informing the development of an online self-management program for men living with HIV: a needs assessment. BMC Public Health. 14: 1209.
    Source Title
    BMC Public Health
    DOI
    10.1186/1471-2458-14-1209
    Additional URLs
    http://www.biomedcentral.com/content/pdf/1471-2458-14-1209.pdf
    ISSN
    1471-2458
    School
    School of Occupational Therapy and Social Work
    Remarks

    This article is published under the Open Access publishing model and distributed under the terms of the Creative Commons Attribution License http://creativecommons.org/licenses/by/4.0/ Please refer to the licence to obtain terms for any further reuse or distribution of this work.

    URI
    http://hdl.handle.net/20.500.11937/37571
    Collection
    • Curtin Research Publications
    Abstract

    Background: The aim of this mixed methods study was to conduct a multifaceted needs assessment to inform the development of an online self-management program for men living with HIV. The objectives were to describe the health-related quality of life for men living with HIV, the impact of living with HIV, and the perceived problem areas and service and support needs of these men. The needs assessment was conducted in accordance with the PRECEDE model for health promotion program planning.Methods: A survey assessing the quality of life of men living with HIV (n = 72) was conducted and results were compared to Australian normative data. Focus groups were also undertaken with men living with HIV (n = 11) and a multidisciplinary team of service providers working in the area of HIV (n = 11). Focus groups enabled an in-depth description of the impact of HIV on quality of life and perceived problem areas in daily life.Results: HIV-positive men experience significantly lower quality of life when compared with Australian normative data, particularly in those domains concerned with social and emotional aspects of quality of life. Qualitative focus groups yielded an overarching theme ‘The psychosocial impact of HIV’ which contained three sub-themes; (1) Life before and after HIV – a changed identity and its repercussions; (2) Resilience and the importance of social support; (3) Negotiating the practicalities – intimate relationships and disclosure.Conclusions: The findings from this needs assessment highlight the need to target socio-emotional contexts of HIV positive men’s daily lives to improve quality of life and well-being. Intervention priorities for the proposed online self-management program include: (1) managing the emotional impact of HIV; (2) disclosing HIV status to family and friends; (3) maintaining social connectedness; (4) managing HIV within intimate relationships; and (5) disclosure of HIV status to intimate partners.

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