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dc.contributor.authorHudson, P.
dc.contributor.authorToye, Christine
dc.contributor.authorKristjanson, Linda
dc.date.accessioned2017-01-30T14:42:15Z
dc.date.available2017-01-30T14:42:15Z
dc.date.created2015-09-29T01:51:45Z
dc.date.issued2006
dc.identifier.citationHudson, P. and Toye, C. and Kristjanson, L. 2006. Would people with Parkinson's disease benefit from palliative care?. Palliative Medicine. 20 (3): pp. 87-94.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/40388
dc.identifier.doi10.1191/0269216306pm1108oa
dc.description.abstract

Parkinson’s disease (PD) is a chronic, progressive, degenerative disorder of the nervous system, causing substantial morbidity and has the capacity to shorten life. People with PD and their families can find the disease devastating. Nevertheless, this population of patients is not usually considered a group to be supported by palliative care specialists. But the nature of the illness and the challenges of managing its many physical and psychological effects raises questions about the potential benefits of a palliative care approach. The purpose of this project was to describe the experience of PD and consider the relevance of palliative care for this population. Semi-structured interviews were conducted with eight people with PD, 21 family caregivers and six health professionals. Five themes were developed from the data analysis: (1) emotional impact of diagnosis; (2) staying connected; (3) enduring financial hardship; (4) managing physical challenges; and (5) finding help for advanced stages. These data revealed that people with PD and family caregivers are confronted with similar issues to people with typical palliative care diagnoses, such as advanced cancer, and that a palliative approach may be helpful in the care of people with PD and their families.

dc.publisherSage Science Press (UK)
dc.subjectParkinson’s disease
dc.subjectpalliative care
dc.subjectresearch
dc.subjectfamily caregivers
dc.titleWould people with Parkinson's disease benefit from palliative care?
dc.typeJournal Article
dcterms.source.volume20
dcterms.source.number3
dcterms.source.startPage87
dcterms.source.endPage94
dcterms.source.issn02692163
dcterms.source.titlePalliative Medicine
curtin.accessStatusFulltext not available


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