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    Evaluation of an information booklet for caregivers of people with dementia: An Australian perspective

    Access Status
    Fulltext not available
    Authors
    Chang, E.
    Easterbrook, S
    Hancock, K.
    Johnson, A.
    Davidson, Patricia
    Date
    2010
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Chang, Esther and Easterbrook, Sally and Hancock, Karen and Johnson, Amanda and Davidson, Patricia. 2010. Evaluation of an information booklet for caregivers of people with dementia: An Australian perspective. Nursing and Health Sciences. 12 (1): pp. 45-51.
    Source Title
    Nursing and Health Sciences
    DOI
    10.1111/j.1442-2018.2009.00486.x
    ISSN
    14410745
    School
    Centre for Cardiovascular and Chronic Care
    URI
    http://hdl.handle.net/20.500.11937/43417
    Collection
    • Curtin Research Publications
    Abstract

    The need for improved communication around end-of-life issues has been identified in cancer care. However, caregivers assisting those with dementia have been given scant attention. This study investigated the application of a new dementia information booklet for family caregivers, accessing those that were both community based and linked to a residential aged-care facility through the distribution of 672 information booklets. This occurred via 14 dementia advisory services and 48 residential aged-care facilities throughout New South Wales, Australia. A total of 233 carers (33%) completed the booklet questionnaire evaluation. The descriptive statistics indicated that most carers found the booklet useful and thought that the booklet should be freely available to them. Almost half of the carers said that they wanted to receive the information at the time of, or soon after, the diagnosis of dementia. Only a small group of respondents considered the information to be confronting. The reported anxiety was thought to be part of a larger issue of dementia education and dealing with loss and not specifically related to the booklet itself.

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