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dc.contributor.authorVan Dijk, M.
dc.contributor.authorPoley, M.
dc.contributor.authorGischler, S.
dc.contributor.authorMazer, P.
dc.contributor.authorIJsselstijn, H.
dc.contributor.authorTibboel, D.
dc.contributor.authorLatour, Jos
dc.date.accessioned2017-01-30T15:10:36Z
dc.date.available2017-01-30T15:10:36Z
dc.date.created2016-09-12T08:36:48Z
dc.date.issued2010
dc.identifier.citationVan Dijk, M. and Poley, M. and Gischler, S. and Mazer, P. and IJsselstijn, H. and Tibboel, D. and Latour, J. 2010. Parental satisfaction with follow-up services for children with major anatomical congenital anomalies. Child Care Health and Development. 36 (1): pp. 101-109.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/43847
dc.identifier.doi10.1111/j.1365-2214.2009.01014.x
dc.description.abstract

Background: Since 1999 a multidisciplinary follow-up programme for parents and children with major anatomical congenital anomalies is in place in our hospital, run by a dedicated team. The aim of the present study was to evaluate the services of this team from a parental perspective. Methods: Parents completed a questionnaire including open and closed questions about satisfaction with the various professional disciplines involved in the follow-up, statements on usefulness of the follow-up services and suggestions for improvement. Results: Four hundred and sixty-nine surveys were sent out, of which 71% were returned. Non-responding parents included significantly more parents of non-Dutch origin (P = 0.038) and parents who never responded to invitations for follow-up examinations (P < 0.001). Parental satisfaction differed for the various disciplines. Eighty per cent of the parents were (very) satisfied with the social worker, compared with 92% with nurses. More than half of the parents agreed that the follow-up services give peace of mind. Almost a quarter of parents, however, considered the follow-up services as redundant. The children of these parents had significantly shorter intensive care unit stay (P = 0.02), were older at the time of the questionnaire (P = 0.04), of higher socio-economic status (P = 0.001) and less likely to be of non-Dutch origin (P = 0.008). Sixty-one per cent of the parents had contacted the 24-h helpline. Ninety per cent of the parents were satisfied with the intensive care unit, almost 80% with the general ward. Conclusion: Overall, parents were satisfied with the services of the follow-up team. Some parents, however, saw room for improvement related to better communication, recognizability of the team and better planning and organization. © 2009 The Authors. Journal compilation © 2009 Blackwell Publishing Ltd.

dc.publisherBlackwell Publishing Ltd
dc.titleParental satisfaction with follow-up services for children with major anatomical congenital anomalies
dc.typeJournal Article
dcterms.source.volume36
dcterms.source.number1
dcterms.source.startPage101
dcterms.source.endPage109
dcterms.source.issn0305-1862
dcterms.source.titleChild Care Health and Development
curtin.departmentSchool of Nursing and Midwifery
curtin.accessStatusFulltext not available


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