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    A validation study of a modified Bouchard activity record that extends the concept of 'uptime' to Rett syndrome

    230246_230246.pdf (691.2Kb)
    Access Status
    Open access
    Authors
    Lor, L.
    Hill, Kylie
    Jacoby, P.
    Leonard, H.
    Downs, Jennepher
    Date
    2015
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Lor, L. and Hill, K. and Jacoby, P. and Leonard, H. and Downs, J. 2015. A validation study of a modified Bouchard activity record that extends the concept of 'uptime' to Rett syndrome. Developmental Medicine and Child Neurology. 57 (12): pp. 1137-1142.
    Source Title
    Developmental Medicine and Child Neurology
    DOI
    10.1111/dmcn.12838
    ISSN
    0012-1622
    School
    School of Physiotherapy and Exercise Science
    Remarks

    This is the peer reviewed version of the following article: Lor, L. and Hill, K. and Jacoby, P. and Leonard, H. and Downs, J. 2015. A validation study of a modified Bouchard activity record that extends the concept of 'uptime' to Rett syndrome. Developmental Medicine and Child Neurology. 57 (12): pp. 1137-1142., which has been published in final form at http://doi.org/10.1111/dmcn.12838. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving at http://olabout.wiley.com/WileyCDA/Section/id-820227.html#terms

    URI
    http://hdl.handle.net/20.500.11937/46404
    Collection
    • Curtin Research Publications
    Abstract

    Aim - The aim of this study was to investigate the validity of using a Bouchard activity record (BAR) in individuals with Rett syndrome to measure physical activity, as compared with pragmatic criterion standard measures of walking status and step counts recorded using the StepWatch activity monitor (SAM). Method - During the waking hours of 1 day, 43 females (mean age 21y, SD 9y) wore a SAM whilst a proxy completed a modified BAR. Responses to the BAR were compared among participants, who were grouped according to walking status, using the Mann–Whitney two-sample rank-sum test. Relationships were sought between BAR responses and step counts using linear regression. Results - According to the proxy-reported BAR responses, those who needed assistance with walking spent more time sitting (median [interquartile range] 9h 15min [8h 8min–10h 30min] vs 6h 15min [4h 15min–8h 30min]; p<0.001) and less time standing (1h [38min–1h 30min] vs 2h 15min [45min–3h 45min]; p=0.04) than those who could walk independently. In those who could walk independently, time classified as ‘uptime’ (standing and walking) using the BAR was associated with increased step count (r2=0.58; p<0.001). Interpretation - These data support the validity of proxy-reported BAR responses. In those who could walk independently, uptime, classified using the BAR, could be used to estimate daily step count. This tool offers an inexpensive method for clinicians to gain insights into physical activity levels in individuals with Rett syndrome.

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