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    Building Community Capacity in Bereavement Support: Lessons Learnt From Bereaved Caregivers

    235327_235327.pdf (449.5Kb)
    Access Status
    Open access
    Authors
    Breen, Lauren
    Aoun, Samar
    Rumbold, Bruce
    McNamara, Beverley
    Howting, Denise
    Mancini, Vincent
    Date
    2017
    Type
    Journal Article
    
    Metadata
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    Citation
    Breen, L. and Aoun, S. and Rumbold, B. and McNamara, B. and Howting, D. and Mancini, V. 2017. Building Community Capacity in Bereavement Support: Lessons Learnt From Bereaved Caregivers. American Journal of Hospice and Palliative Medicine. 34 (3): pp. 275-281.
    Source Title
    American Journal of Hospice and Palliative Medicine
    DOI
    10.1177/1049909115615568
    School
    School of Psychology and Speech Pathology
    URI
    http://hdl.handle.net/20.500.11937/4775
    Collection
    • Curtin Research Publications
    Abstract

    BACKGROUND: Most bereaved people do not require specialist intervention, yet building community capacity in providing bereavement support is underdeveloped. While family caregivers indicate a need for more information about bereavement, there is little evidence to guide what this information might contain. OBJECTIVE: The study's purpose was to inform bereavement support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation. DESIGN: Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded. SETTING/PARTICIPANTS: The sample size for this study comprised 265 bereaved people whose relative used palliative care services. MEASUREMENTS: The questionnaire comprised 82 questions about caregiving, bereavement support, current bereavement-related distress, and 2 open-ended questions concerning their bereavement, one of them on advice they have to other people in the same situation. RESULTS: Family caregivers (n = 140) of people who received palliative care responded to the open-ended question about advice for others. An open content analysis yielded 3 themes-preparations for bereavement, utilizing social networks, and strategies for dealing with grief. CONCLUSIONS: Bereaved family caregivers' experiential knowledge can be harnessed to progress the development of bereavement care strategies for the good of the community. These responses could be incorporated into information brochures, posters, and other community education avenues in order to upskill palliative care bereavement volunteers and the wider community so that bereaved family caregivers are best supported.

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      Background: Palliative care standards advocate support for grieving caregivers, given that some bereaved people fail to integrate their loss, experience ongoing emotional suffering and adverse health outcomes. Research ...
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