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    Professional relationships in palliative care decision making

    Access Status
    Fulltext not available
    Authors
    Lee, S.
    Kristjanson, Linda
    Williams, Anne
    Date
    2008
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Lee, Susan and Kristjanson, Linda and Williams, Anne. 2008. Professional relationships in palliative care decision making. Supportive Care in Cancer. 17 (4): pp. 445-450.
    Source Title
    Supportive Care in Cancer
    DOI
    10.1007/s00520-008-0516-z
    ISSN
    09414355
    Faculty
    School of Nursing and Midwifery
    Faculty of Health Sciences
    Western Australian Centre for Cancer and Palliative Care (WACCP)
    School
    WA Centre for Cancer and Palliative Care (WACCPC)
    Remarks

    The original publication is available at: http://www.springerlink.com

    URI
    http://hdl.handle.net/20.500.11937/4806
    Collection
    • Curtin Research Publications
    Abstract

    Background: Decision making in the context of palliative care is particularly complex given the unpredictable illness trajectories experienced by patients and the number of individuals who may be part of decision-making processes. This study aimed to describe the significant issues that influence the processes of care decision making, from the perspective of patients with advanced illness. Methods: Patients (14), family members (7) and health professionals (18) were interviewed and field observations (100 h) of decision-making practices were undertaken in two Australian palliative care services. A systematic approach using grounded theory to collect and analyse the data was used to develop a theory of decision making from the patient's perspective. Results: The main issue experienced by palliative care patients was identified as a lack of involvement in decision making. One of the significant factors affecting the decision process is the type of relationship with health professionals that patients believe enhances their involvement in decision making. This was determined by the manner and focus of the health professional, their trustworthiness as well as the healthcare culture and environment. This paper provides a greater understanding of the perspective of patients in relation to their involvement in decisions related to palliative care.

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