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    The health professionals’ perspectives of support needs of adult head and neck cancer survivors and their families: a Delphi study

    250546.pdf (477.0Kb)
    Access Status
    Open access
    Authors
    Breen, Lauren
    O'Connor, Moira
    Calder, Samuel
    Tai, Vivian
    Cartwright, Jade
    Beilby, Janet
    Date
    2017
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Breen, L. and O Connor, M. and Calder, S. and Tai, V. and Cartwright, J. and Beilby, J. 2017. The health professionals’ perspectives of support needs of adult head and neck cancer survivors and their families: a Delphi study. Supportive Care in Cancer. 25 (8): pp. 2413-2420.
    Source Title
    Supportive Care in Cancer
    DOI
    10.1007/s00520-017-3647-2
    ISSN
    0941-4355
    School
    School of Psychology and Speech Pathology
    Remarks

    The final publication is available at Springer via http://doi.org/10.1007/s00520-017-3647-2

    URI
    http://hdl.handle.net/20.500.11937/48959
    Collection
    • Curtin Research Publications
    Abstract

    Purpose: The aim was to identify the views of Australian and New Zealand health professionals regarding the support needs of people with head and neck cancer (HNC) and their families and current gaps in service delivery. Methods: A modified Delphi process assessed support needs of people with HNC following acute medical management. A systematic review of the literature was used to develop items relevant to seven key concepts underpinning the psychological experience of living with HNC. A panel of 105 health professionals was invited to participate in two questionnaire rounds. Results: Of the potential panellists, 50 (48%) completed round 1, and of these, 39 (78%) completed round 2. Following two rounds, there was consensus agreement on the concepts uncertainty and waiting, disruption to daily life and fear of recurrence. The concepts the diminished self, making sense of and managing the experience, sharing the burden and finding a path did not achieve consensus. There were no differences in responses according to gender, organization type or location. Medical professionals had significantly higher agreement for the concept uncertainty and waiting compared to allied health professionals, and professionals with five years’ or more experience had significantly higher agreement than those with less experience. Conclusions: Health professionals agreed that many psychosocial support needs of HNC survivors and families are not being met and that they experience difficulties in meeting these needs. Findings may inform evidence-based treatment programs for HNC survivors and their families to promote psychological resilience and quality of life in this vulnerable population.

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