The AREST CF experience in biobanking — More than just tissues, tubes and time
Citation
Source Title
ISSN
Collection
Abstract
© 2017 European Cystic Fibrosis Society Research to further improve outcomes for people with CF is dependent upon well characterised, archived and accessible clinical specimens. The recent article by Beekman et al. published in Journal of Cystic Fibrosis summarised a scientific meeting at the 13th ECFS Basic Science Conference. This meeting discussed how well-annotated, clinical biobanks for CF could be established in Europe to meet the needs of therapeutic development. The Australian Respiratory Early Surveillance Team for Cystic Fibrosis (AREST CF) has conducted biobanking of CF research and clinical specimens since the late 1990s and is custodian of the most comprehensive paediatric CF biobank in the world that focuses on the first years of life. This short communication will describe the approach undertaken by AREST CF in establishing a clinical specimen biobank.
Related items
Showing items related by title, author, creator and subject.
-
Meir, K.; Gaffney, E.; Simeon-Dubach, D.; Ravid, R.; Watson, P.; Schacter, B.; Morente, M.; Bjugn, R.; Clark, B.; De Blasio, P.; Carpenter, J.; Deschenes, M.; Devereux, L.; Dhir, R.; Goebell, P.; Grizzle, W.; Hainaut, P.; Mes-Masson, A.; Miranda, L.; Parry-Jones, A.; Riegman, P.; Casali-Da-Rocha, J.; Soares, F.; Vaught, J.; Zeps, Nikolajs (2011)The biobanking literature frequently addresses donor and societal issues surrounding biobanking, but the biobanker's perspective is rarely highlighted. While not comprehensive, this article offers an overview of the human ...
-
Mee, B.; Gaffney, E.; Glynn, S.; Donatello, S.; Carroll, P.; Connolly, E.; Mc Garrigle, S.; Boyle, Terry; Flannery, D.; Sullivan, F.; McCormick, P.; Griffin, M.; Muldoon, C.; Fay, J.; O'Grady, T.; Kay, E.; Eustace, J.; Burke, L.; Sheikh, A.; Finn, S.; Flavin, R.; Giles, F. (2013)Biobank Ireland Trust (BIT) was established in 2004 to promote and develop an Irish biobank network to benefit patients, researchers, industry, and the economy. The network commenced in 2008 with two hospital biobanks and ...
-
Watson, P.; Nussbeck, S.; Carter, C.; O'Donoghue, S.; Cheah, S.; Matzke, L.; Barnes, R.; Bartlett, J.; Carpenter, J.; Grizzle, W.; Johnston, R.; Mes-Masson, A.; Murphy, L.; Sexton, K.; Shepherd, L.; Simeon-Dubach, D.; Zeps, Nikolajs; Schacter, B. (2014)Each year funding agencies and academic institutions spend millions of dollars and euros on biobanking. All funding providers assume that after initial investments biobanks should be able to operate sustainably. However ...