The risk of re-identification versus the need to identify individuals in rare disease research.
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Hansson, M. and Lochmuller, H. and Riess, O. and Schaefer, F. and Orth, M. and Rubinstein, Y. and Molster, C. et al. 2016. The risk of re-identification versus the need to identify individuals in rare disease research.. European Journal of Human Genetics. 24 (11): pp. 1553-1558.
European Journal of Human Genetics
Centre for Population Health Research