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    Assessing the diagnostic validity of a blind register

    Access Status
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    Authors
    Crewe, Julie
    Morgan, W.
    Morlet, Nigel
    Spilsbury, Katrina
    Mukhtar, Syed Aqif
    Clark, Antony
    Ng, Jonathon
    Crowley, Margaret
    Semmens, James
    Date
    2011
    Type
    Journal Article
    
    Metadata
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    Citation
    Crewe, J. and Morgan, W. and Morlet, N. and Spilsbury, K. and Mukhtar, S.A. and Clark, A. and Ng, J. et al. 2011. Assessing the diagnostic validity of a blind register. Clinical and Experimental Ophthalmology. 39 (6): pp. 494-500.
    Source Title
    Clinical and Experimental Ophthalmology
    DOI
    10.1111/j.1442-9071.2011.02509.x
    ISSN
    14426404
    School
    Centre for Population Health Research
    URI
    http://hdl.handle.net/20.500.11937/5920
    Collection
    • Curtin Research Publications
    Abstract

    Background:  To validate the accuracy of clinical ophthalmic information held on the West Australian blind register. Design:  Community-based cross-sectional study. Participants:  Legally blind or severely vision-impaired people were selected randomly from the Association for the Blind of Western Australia register. Methods:  Individuals were reviewed by one of two consultant ophthalmologists. Main Outcome Measures:  The positive predictive value (ppv), sensitivity and specificity for legal blindness status and diagnostic causes of vision loss were calculated using data extracted from the Association for the Blind of Western Australia blind register. Results:  273 blind or near blind people were reviewed from the register total of 4271 individuals. There were more women (57%) than men, median age 81 years. For legal blindness status the ppv was 0.88 (95% confidence interval [CI] 0.82–0.92), sensitivity 0.75 (95% CI 0.74–0.84) and specificity 0.6 (95% CI 0.46–0.73). The ppv for the diagnostic causes of blindness were: age-related macular degeneration = 0.95 (95% CI 0.91–0.97), retinitis pigmentosa ppv = 1 (95% CI 0.81–1.0), diabetic retinopathy ppv = 0.9 (95% CI 0.57–0.99), optic neuropathies ppv = 0.77 (95% CI 0.51–0.92) and glaucoma ppv = 0.87 (95% CI 0.7–0.96). Forty individuals (15%) had treatable conditions contributing to their vision loss. Conclusions:  The blind register diagnoses and legal blindness status are of high accuracy. This information allows useful linkages to other databases for studies of blindness interactions. A regular updating mechanism would improve the future accuracy of this valuable regional asset. The presence of untreated cataract suggests that regular follow up and appropriate treatment may help optimize vision in blind patients.

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