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    Promoting the consumer voice in palliative care: exploring the possibility of using consumer impact statements

    194345_194345.pdf (145.8Kb)
    Access Status
    Open access
    Authors
    McConigley, Ruth
    Shelby-James, T.
    Currow, D.
    Date
    2013
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    McConigley, Ruth and Shelby-James, Tania and Currow, David. 2013. Promoting the consumer voice in palliative care: exploring the possibility of using consumer impact statements. Health Expectations. 18 (5): pp. 653-660.
    Source Title
    Health Expectations
    DOI
    10.1111/hex.12118
    ISSN
    1369 6513
    Remarks

    This is the accepted version of the following article: McConigley, Ruth and Shelby-James, Tania and Currow, David C. 2013. Promoting the consumer voice in palliative care: exploring the possibility of using consumer impact statements. Health Expectations. Advance online publication, which has been published in final form at http://doi.org/10.1111/hex.12118

    URI
    http://hdl.handle.net/20.500.11937/6263
    Collection
    • Curtin Research Publications
    Abstract

    BACKGROUND: It can be difficult to engage consumers in health decision making. This is particularly so in the area of palliative care, where consumers are very unwell and are unlikely to become involved in long-term programmes that promote consumer input. This paper explores the possibility of using ‘Consumer Impact Statements’ to facilitate the inclusion of the viewpoint of people at the end of life in the process of policy and decision making, particularly in the area of subsidy of pharmaceuticals used in palliative care. SEARCH STRATEGY: A broad search was conducted to find information about the use of impact statements in any health field. The health literature and grey literature were searched to explore the use of Consumer Impact Statements to date. RESULTS: No papers were found describing the use of Consumer Impact Statements in the palliative care setting. Health impact assessment is used in the areas of environmental health and community health. Impact statements are less commonly used in other areas of health, especially policy development, and no formal description of a Consumer Impact Statement was found. DISCUSSION: There is considerable scope for developing the use of Consumer Impact Statements to promote the consumer viewpoint in health decision making, because it will allow people who are otherwise unlikely to contribute to the public debate to have their views heard by decision makers. CONCLUSION: The use of Consumer Impact Statements is particularly suited to palliative care, given that consumers are often otherwise unable to contribute to the public debate.

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