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dc.contributor.authorStewart-Archer, L.
dc.contributor.authorAfghani, A.
dc.contributor.authorToye, Christine
dc.contributor.authorGomez, F.
dc.identifier.citationStewart-Archer, L. and Afghani, A. and Toye, C. and Gomez, F. 2015. Dialogue on Ideal End-of-Life Care for Those With Dementia. The American Journal of Hospice and Palliative Medicine. 32 (6): pp. 620-630.

Purpose: To identify both meanings and perceptions of delivery of end-of-life (EoL) care for the person experiencing dementia. Design/Methods: As part of a larger cross-sectional mixed methods study examining quality of life in dementia, perspectives of EoL care were sought from 136 seniors using open-ended questions administered at interview. Results: Seniors living in various settings identified obligatory requisites of care as time when the finality of death needed to be accepted, comfort was prioritized, family presence was valued, appearance remained important, and solitude or time “to be with God” was stressed. Skilled nursing care, honesty, and engaged family were also necessary. Implications: Understanding EoL preferences of those with dementia is critical for advocacy and service delivery.

dc.publisherSage Publisher
dc.titleDialogue on Ideal End-of-Life Care for Those With Dementia
dc.typeJournal Article
dcterms.source.titleThe American Journal of Hospice and Palliative Medicine
curtin.departmentSchool of Nursing, Midwifery and Paramedicine
curtin.accessStatusFulltext not available

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