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    Empowering parents of Australian infants and children in hospital: Translation, cultural adaptation, and validation of the EMpowerment of PArents in The Intensive Care-30-AUS Questionnaire

    263724.pdf (489.3Kb)
    Access Status
    Open access
    Authors
    Gill, Fenella
    Wilson, Sally
    Aydon, L.
    Leslie, Gavin
    Latour, Jos
    Date
    2017
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Gill, F. and Wilson, S. and Aydon, L. and Leslie, G. and Latour, J. 2017. Empowering parents of Australian infants and children in hospital: Translation, cultural adaptation, and validation of the EMpowerment of PArents in The Intensive Care-30-AUS Questionnaire. Pediatric Critical Care Medicine. 18 (11): pp. e506-e513.
    Source Title
    Pediatric Critical Care Medicine
    DOI
    10.1097/PCC.0000000000001309
    ISSN
    1529-7535
    School
    School of Nursing, Midwifery and Paramedicine
    URI
    http://hdl.handle.net/20.500.11937/65644
    Collection
    • Curtin Research Publications
    Abstract

    Objectives: To translate, culturally adapt, and psychometrically test the EMpowerment of PArents in The Intensive Care-30 questionnaire in Australian pediatric critical care, neonatal, and pediatric ward settings. Design: Cross-sectional, descriptive, multicenter study conducted in two phases; 1) translation and cultural adaptation and 2) validation of the EMpowerment of PArents in The Intensive Care-30 questionnaire. Settings: Two Western Australian sites, the PICU and two pediatric wards of a children's hospital and the neonatal unit of a women's and newborn hospital. Participants: Parents whose baby or child was admitted to the participating wards or units with a length of hospital stay greater than 24 hours. Intervention: None. Measurements and Main Results: Phase 1: A structured 10-step translation process adhered to international principles of good practice for translation and cultural adaptation of patient-reported outcomes. Thirty parents participated in cognitive debriefing. Phase 2: A total of 328 parents responded to the EMpowerment of PArents in The Intensive Care-30-AUS questionnaire. Reliability was sufficient (Cronbach á at domain level 0.70 -0.82, for each clinical area 0.56-0.86). Congruent validity was adequate between the domains and three general satisfaction items (rs 0.38-0.69). Nondifferential validity showed no significant effect size between three patient or parent demographic characteristics and the domains (Cohen's d < 0.36). Between the different clinical areas, significant differences in responses were found in all domains. Conclusions: The translated and culturally adapted EMpowerment of PArents in The Intensive Care-30-AUS is a reliable and valid questionnaire to measure parent-reported outc omes in pediatric critical care, pediatric ward, and neonatal hospital settings. Using this questionnaire can provide a framework for a standardized quality improvement approach and identification of best practices across specialties, hospital services and for benchmarking similar health services worldwide.

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    • EMpowerment of PArents in THe Intensive Care Questionnaire: Translation and Validation in Italian PICUs
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