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dc.contributor.authorMahdi, S.
dc.contributor.authorViljoen, M.
dc.contributor.authorYee, T.
dc.contributor.authorSelb, M.
dc.contributor.authorSinghal, N.
dc.contributor.authorAlmodayfer, O.
dc.contributor.authorGranlund, M.
dc.contributor.authorde Vries, P.
dc.contributor.authorZwaigenbaum, L.
dc.contributor.authorBolte, Sven
dc.date.accessioned2018-05-18T07:57:25Z
dc.date.available2018-05-18T07:57:25Z
dc.date.created2018-05-18T00:23:16Z
dc.date.issued2018
dc.identifier.citationMahdi, S. and Viljoen, M. and Yee, T. and Selb, M. and Singhal, N. and Almodayfer, O. and Granlund, M. et al. 2018. An international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework. Autism Research. 11 (3): pp. 463-475.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/67138
dc.identifier.doi10.1002/aur.1905
dc.description.abstract

This is the third in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF) Core Sets for Autism Spectrum Disorder (ASD). The present study aimed to describe functioning in ASD (as operationalized by the ICF) derived from the perspectives of diagnosed individuals, family members, and professionals. A qualitative study using focus groups and semi-structured interviews were conducted with 19 stakeholder groups (N = 90) from Canada, India, Saudi Arabia, South Africa, and Sweden. Meaningful concepts from the focus groups and individual interviews were linked to ICF categories using a deductive qualitative approach with standardized linking procedures. The deductive qualitative content analysis yielded meaningful functioning concepts that were linked to 110 ICF categories across all four ICF components. Broad variation of environmental factors and activities and participation categories were identified in this study, while body functions consisted mainly of mental functions. Body structures were sparsely mentioned by the participants. Positive aspects of ASD included honesty, attention to detail, and memory. The experiences provided by international stakeholders support the need to understand individuals with ASD in a broader perspective, extending beyond diagnostic criteria into many areas of functioning and environmental domains. This study is part of a larger systematic effort that will provide the basis to define ICF Core Sets for ASD, from which assessment tools can be generated for use in clinical practice, research, and health care policy making. Autism Res 2018, 11: 463–475. © 2017 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. Lay Summary: The study findings support the need to understand the living experiences of individuals with Autism Spectrum Disorder (ASD) from a broader perspective, taking into account many areas of an individual's functioning and environment. The ICF can serve as foundation for exploring these living experiences more extensively by offering tools that enable wide variety of individual difficulties and strengths to be captured along with important environmental influences. As such, these tools can facilitate interventions that meet the needs and goals of the individual.

dc.publisherJohn Wiley & Sons, Inc.
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.titleAn international qualitative study of functioning in autism spectrum disorder using the World Health Organization international classification of functioning, disability and health framework
dc.typeJournal Article
dcterms.source.volume11
dcterms.source.number3
dcterms.source.startPage463
dcterms.source.endPage475
dcterms.source.issn1939-3792
dcterms.source.titleAutism Research
curtin.departmentSchool of Occupational Therapy, Social Work and Speech Path
curtin.accessStatusFulltext not available


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