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    Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification

    Access Status
    Fulltext not available
    Authors
    Bolte, Sven
    Tomalski, P.
    Marschik, P.
    Berggren, S.
    Norberg, J.
    Falck-Ytter, T.
    Pokorska, O.
    Jones, E.
    Charman, T.
    Roeyers, H.
    Kostrzewa, E.
    Date
    2016
    Type
    Journal Article
    
    Metadata
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    Citation
    Bolte, S. and Tomalski, P. and Marschik, P. and Berggren, S. and Norberg, J. and Falck-Ytter, T. and Pokorska, O. et al. 2016. Challenges and Inequalities of Opportunities in European Psychiatry Research: The Example of Psychodiagnostic Tool Availability in Research on Early Autism Identification. European Journal of Psychological Assessment.
    Source Title
    European Journal of Psychological Assessment
    DOI
    10.1027/1015-5759/a000340
    ISSN
    1015-5759
    School
    School of Occ Therapy, Social Work and Speech Path
    URI
    http://hdl.handle.net/20.500.11937/68931
    Collection
    • Curtin Research Publications
    Abstract

    © 2016 Hogrefe Publishing. Europe is diverse in terms of economy, cultures, socio-demography, and languages. A crucial aspect of psychiatric research is the availability of standardized screening, diagnostic, and characterization instruments. We fine-mapped the accessibility of 14 clinical scales and cognitive tests for the assessment of early childhood Autism Spectrum Disorder (ASD; e.g., ADOS, ADI-R, SCQ, SRS, CHAT, MESL) within 21 European countries. These tools are essential for internationally com petitive early ASD detection research. We identified a considerable variation not only in the availability, but also psychometric standardization, and formal distribution of the instruments between the countries, privileging English speaking, high-income, and highly populated European countries. Absence of country-specific standardization was a problem across many countries, independent of income and size. Findings demonstrate, on a concrete level, the challenges in creating equal early ASD identification research opportunities in Europe, and the need for increased funding for instrument development and validation. We discuss the reasons, implications, and consequences of this inequity and ways of reducing it.

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