Needs of people with dementia and their spousal carers: A study of those living in the community
MetadataShow full item record
© 2019 AJA Inc. Objective: To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia. Methods: An interpretive description approach was utilised. Semi-structured interviews were conducted with 10 dyads of spousal carers and people with dementia. Comparative analysis was used to develop themes regarding need, which were reviewed using two focus groups of spousal carers. Results: Three major themes were developed through analysis of data from the interviews and were refined by the focus groups: (a) environmental enablers to support care; (b) strong caring relationships; and (c) adaptation of daily life roles. Conclusions: As dementia progresses, continued support to maintain participation in meaningful activity is needed. Strong caring relationships, knowledge and an understanding of dementia among health professionals, service providers and family members were key to maintaining support for the needs of people with dementia and their spousal carers.
Showing items related by title, author, creator and subject.
Horner, Barbara; Jiwa, Moyez; Cuesta-Briand, Beatriz; Fyfe, Katrina; Osborne, Ashlee (2012)Background: Over 250 000 Australians live with dementia, and it is estimated that this number will more than double by 2030. Many people with dementia or cognitive impairment are cared for at home by family carers who may ...
Developing and testing a strategy to enhance a palliative approach and care continuity for people who have dementia: Study overview and protocolToye, Christine; Robinson, A.; Jiwa, Moyez; Andrews, S.; McInerney, F.; Horner, Barbara; Holloway, Kristi; Stratton, B. (2012)Background: Typically, dementia involves progressive cognitive and functional deterioration, leading to death. A palliative approach recognizes the inevitable health decline, focusing on quality of life. The approach is ...
A person-centred approach to family carer needs assessment and support in dementia community care in Western AustraliaAoun, Samar; Toye, Christine; Slatyer, Susan; Robinson, A.; Beattie, E. (2018)© 2018 John Wiley & Sons Ltd. This feasibility study aimed to identify and address the support needs of family carers (FCs) of people living with dementia and to assess whether the use of the Carer Support Needs Assessment ...