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dc.contributor.authorSullivan, R.
dc.contributor.authorUgalde, A.
dc.contributor.authorSinclair, C.
dc.contributor.authorBreen, Lauren
dc.date.accessioned2019-10-30T10:20:18Z
dc.date.available2019-10-30T10:20:18Z
dc.date.issued2019
dc.identifier.citationSullivan, R. and Ugalde, A. and Sinclair, C. and Breen, L.J. 2019. Developing a Research Agenda for Adult Palliative Care: A Modified Delphi Study. Journal of Palliative Medicine. 22 (5): pp. 480-488.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/76691
dc.identifier.doi10.1089/jpm.2018.0462
dc.description.abstract

Background: Little is known about research priorities in adult palliative care. Identifying research priorities for adult palliative care will help in increasing research quality and translation. Objective: The aim was to identify the views of health professionals' research priorities in adult palliative care that lead to development of a palliative care research agenda in Australia. Design: A modified three-round Delphi survey. Setting/Subjects: Palliative care researchers and clinicians in Australia were invited to participate. Results: A total of 25 panelists completed round 1, 14 completed round 2, and 13 completed round 3. Round 1 resulted in 90 research priorities in 13 categories. Round 2 showed consensus agreement on 19/90 research priorities. Round 3 resulted in the top 10 research priorities of the 19 achieving consensus in round 2. Panelists agreed that research is needed on the transition to palliative care; improving communication about prognosis; increasing access to palliative care for indigenous communities, people who wish to remain at home, and people in aged care; addressing family caregivers' needs; promoting patients' and families' decision making; improving cross-cultural aspects of palliative care; determining the effects of assisted dying legislation; and improving bereavement care in rural, remote, and Aboriginal populations. Conclusions: The expert panelists identified the top 10 research priorities for adult palliative care. These identified research priorities are the most urgent topics requiring attention to increase the quality of life of patients requiring palliative care and their family members.

dc.languageEnglish
dc.publisherMARY ANN LIEBERT, INC
dc.subjectScience & Technology
dc.subjectLife Sciences & Biomedicine
dc.subjectHealth Care Sciences & Services
dc.subjectDelphi
dc.subjectpalliative care
dc.subjectresearch agenda
dc.subjectresearch priorities
dc.subjectQUALITY-OF-LIFE
dc.subjectRESEARCH PRIORITIES
dc.subjectEND
dc.subjectBARRIERS
dc.subjectPATIENT
dc.subjectMODELS
dc.subjectHOME
dc.titleDeveloping a Research Agenda for Adult Palliative Care: A Modified Delphi Study
dc.typeJournal Article
dcterms.source.volume22
dcterms.source.number5
dcterms.source.startPage480
dcterms.source.endPage488
dcterms.source.issn1096-6218
dcterms.source.titleJournal of Palliative Medicine
dc.date.updated2019-10-30T10:20:18Z
curtin.note

Final publication is available from Mary Ann Liebert, Inc., publishers

curtin.departmentSchool of Psychology
curtin.accessStatusOpen access
curtin.facultyFaculty of Health Sciences
curtin.contributor.orcidBreen, Lauren [0000-0002-0463-0363]
curtin.contributor.researcheridBreen, Lauren [B-8746-2013]
dcterms.source.eissn1557-7740
curtin.contributor.scopusauthoridBreen, Lauren [22633437500]


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