Experiences of National Disability Insurance Scheme planning from the perspective of adults with intellectual disability

Abstract

Background: The National Disability Insurance Scheme (NDIS) is attempting to address long term inequalities experienced by people with disabilities. Through planning, the NDIS aims for people with disability to exercise choice and control over supports. People with intellectual disability will be the largest group of NDIS participants. It is important to understand how they experience and perceive NDIS planning.

Method: Ten adults with intellectual disability participated in semi structure interviews to explore their experiences of NDIS planning. The eight male and two female participants were aged between 22 and 64, and lived in a metropolitan area, five independently, four with family and one with a house mate. All participants received support from their family and/or formal services. Data on level of disability was not collected but all participants were able to verbally communicate. Thematic analysis was utilised.

Results: Six themes were identified: (i) planning preparation not fit for purpose, (ii) creating goals, (iii) goals not met, (iv) planning not meeting real needs, (iv) restricted choice and control, and (vi) importance of relationship with planner.

Implementation: In principle the NDIS presents a real opportunity to increase choice and control, social participation and independence of people with disability, however this does not always translate into practice for people with intellectual disability. Opportunities for improving planning are identified.