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dc.contributor.authorWeaver, Rhys
dc.contributor.authorO’Connor, M.
dc.contributor.authorCarey Smith, R.
dc.contributor.authorSheppard, D.
dc.contributor.authorHalkett, Georgia
dc.date.accessioned2021-11-29T05:37:27Z
dc.date.available2021-11-29T05:37:27Z
dc.date.issued2021
dc.identifier.citationWeaver, R. and O’Connor, M. and Carey Smith, R. and Sheppard, D. and Halkett, G.K.B. 2021. “We’re on a Merry-Go-Round”: Reflections of Patients and Carers after Completing Treatment for Sarcoma. Current Oncology. 28 (4): pp. 3003-3014.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/86685
dc.identifier.doi10.3390/curroncol28040263
dc.description.abstract

Sarcoma is a rare cancer that has a significant impact on patients’ and carers’ quality of life. Despite this, there has been a paucity of research exploring the diverse experiences of patients and carers following sarcoma treatment. The aim of this study was to explore patients’ and carers’ reflections on life after treatment for sarcoma. A qualitative research design with a social constructionist epistemology was used. Participants included patients previously treated for sarcoma (n = 21) and family carers of patients treated for sarcoma (n = 16). Participants completed semi-structured interviews which were analysed using thematic analysis. Three primary themes were identified: “This journey is never going to be over”, “But what happens when I am better?”, and finding a silver lining. Participants represented sarcoma as having a long-term, and sometimes indefinite, threat on their life that they had limited control over. Conclusions: This study highlight the heterogeneous and ongoing needs of sarcoma survivors and their families. Patients and carers strove to translate their experiences in a meaningful way, such as by improving outcomes for other people affected by sarcoma. Parental carers in particular attempted to protect the patient from the ongoing stress of managing the disease.

dc.languageEnglish
dc.publisherMDPI
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectScience & Technology
dc.subjectLife Sciences & Biomedicine
dc.subjectOncology
dc.subjectsarcoma
dc.subjectsurvivorship
dc.subjectoncology
dc.subjectcaregivers
dc.subjectqualitative research
dc.subjectrare cancer
dc.subjectQUALITY-OF-LIFE
dc.subjectCANCER RECURRENCE
dc.subjectEXPERIENCE
dc.subjectDEPRESSION
dc.subjectINTERVIEWS
dc.subjectFAMILY
dc.subjectLOCUS
dc.subjectWORK
dc.subjectFEAR
dc.title“We’re on a Merry-Go-Round”: Reflections of Patients and Carers after Completing Treatment for Sarcoma
dc.typeJournal Article
dcterms.source.volume28
dcterms.source.number4
dcterms.source.startPage3003
dcterms.source.endPage3014
dcterms.source.issn1198-0052
dcterms.source.titleCurrent Oncology
dc.date.updated2021-11-29T05:37:26Z
curtin.note

© 2021 The Authors. Published by MDPI Publishing.

curtin.departmentCurtin School of Nursing
curtin.accessStatusOpen access
curtin.facultyFaculty of Health Sciences
curtin.contributor.orcidHalkett, Georgia [0000-0003-4065-4044]
dcterms.source.eissn1718-7729
curtin.contributor.scopusauthoridHalkett, Georgia [8909188900]


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