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dc.contributor.authorBreen, Lauren
dc.contributor.authorHuseini, Taha
dc.contributor.authorSame, Anne
dc.contributor.authorPeddle-McIntyre, C.J.
dc.contributor.authorLee, Y.C.G.
dc.date.accessioned2022-08-26T01:58:22Z
dc.date.available2022-08-26T01:58:22Z
dc.date.issued2022
dc.identifier.citationBreen, L.J. and Huseini, T. and Same, A. and Peddle-McIntyre, C.J. and Lee, Y.C.G. 2022. Living with mesothelioma: A systematic review of patient and caregiver psychosocial support needs. Patient Education and Counseling. 105 (7): pp. 1904-1916.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/89240
dc.identifier.doi10.1016/j.pec.2022.02.017
dc.description.abstract

Objective: Practice guidelines emphasize the importance of investigating psychosocial distress in mesothelioma patients and family caregivers. We aimed to synthesize research on the psychosocial support needs of mesothelioma patients and their family caregivers. Methods: We conducted a systematic review with a narrative synthesis and quality assessment. The review process adhered to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Results: MEDLINE, EMBASE, Scopus, PsychArticles, and PsycINFO were searched until December 2020 and 37 studies in English met inclusion criteria. Most (n = 24) included mesothelioma patients as a very small proportion of their cancer samples. A narrative synthesis was conducted on the 13 studies including only mesothelioma patients (n = 297) and/or caregivers (n = 82). Patients and caregivers want improvements in the diagnosis delivery and access to palliative care. Patients want emotional support, patient-centered treatment, improved information about illness progression and death, and to meet others with mesothelioma. Caregivers want one-on-one practical and emotional support. Study quality varied. Conclusions: Few studies focus on the psychosocial support needs relevant to mesothelioma. Mesothelioma patients and family caregivers highlight targeted psychosocial care as an unmet need. Practice Implications: Efforts are required to design and test psychosocial interventions for this vulnerable and overlooked group. Protocol Registration: PROSPERO (registration number CRD42020167852).

dc.languageeng
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectCancer
dc.subjectCaregivers
dc.subjectMesothelioma
dc.subjectOncology
dc.subjectPatients
dc.subjectPsychosocial aspects
dc.subjectQuality of life
dc.subjectSystematic review
dc.subjectCaregivers
dc.subjectHumans
dc.subjectMesothelioma
dc.subjectPalliative Care
dc.subjectPsychosocial Support Systems
dc.subjectQuality of Life
dc.titleLiving with mesothelioma: A systematic review of patient and caregiver psychosocial support needs
dc.typeJournal Article
dcterms.source.volume105
dcterms.source.number7
dcterms.source.startPage1904
dcterms.source.endPage1916
dcterms.source.issn0738-3991
dcterms.source.titlePatient Education and Counseling
dc.date.updated2022-08-26T01:58:22Z
curtin.departmentCurtin School of Population Health
curtin.accessStatusOpen access
curtin.facultyFaculty of Health Sciences
curtin.contributor.orcidBreen, Lauren [0000-0002-0463-0363]
curtin.contributor.researcheridBreen, Lauren [B-8746-2013]
dcterms.source.eissn1873-5134
curtin.contributor.scopusauthoridBreen, Lauren [22633437500]


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