“I struggle at times to see her struggle”: Mothers' perspectives on dyslexia-related school struggles and the inter-connected nature of mother and child well-being

Abstract

Introduction: Parents of children with dyslexia may be at elevated risk for parenting stress and mental health concerns. Our aim was to explore the emotional experience of growing up with dyslexia in Australia from parents' perspectives. In so doing, we also developed an understanding of parents' own mental health and support needs informed by their lived experience. Methodology: Seventeen interviews with mothers of children (9–14 years; 16 with a diagnosis of dyslexia) were analysed using Braun and Clarke's reflexive thematic analysis approach. Analysis: Five themes were developed to address our aim: Theme 1: Years in the wilderness: Life before diagnosis; 2: “I struggle at times to see her struggle”; 3. School struggles: Advocating for our children and managing distress; 4. “It's a full-time job” and a “long slog”; 5: Care for the carer: Social support and coping strategies. Conclusions: Our analysis suggests that mothers of children with dyslexia may be at elevated risk for mental health concerns. Specifically, chronic worry and stress, secondary distress, challenges to parenting self-efficacy, and lack of support and understanding (feeling isolated) were highlighted as plausible risk factors. Mothers described coping strategies at the community level (e.g., school connectedness) and at the individual level (e.g., “acceptance”) as protective.