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    Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis

    Access Status
    Fulltext not available
    Authors
    Heward, K.
    Gough, B.
    Molineux, Matthew
    Date
    2011
    Type
    Journal Article
    
    Metadata
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    Citation
    Heward, Kate and Gough, Brendan and Molineux, Matthew. 2011. Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis. Social Care and Neurodisabilty. 2 (1): pp. 21-32.
    Source Title
    Social Care and Neurodisabilty
    DOI
    10.5042/scn.2011.0081
    ISSN
    2042-0919
    School
    School of Occupational Therapy and Social Work
    URI
    http://hdl.handle.net/20.500.11937/12831
    Collection
    • Curtin Research Publications
    Abstract

    The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired.

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