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dc.contributor.authorHeward, K.
dc.contributor.authorGough, B.
dc.contributor.authorMolineux, Matthew
dc.identifier.citationHeward, Kate and Gough, Brendan and Molineux, Matthew. 2011. Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis. Social Care and Neurodisabilty. 2 (1): pp. 21-32.

The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired.

dc.publisherPier Professional Ltd
dc.titleChange of identity: the psychological and emotional impact of caring for someone with multiple sclerosis
dc.typeJournal Article
dcterms.source.titleSocial Care and Neurodisabilty
curtin.departmentSchool of Occupational Therapy and Social Work
curtin.accessStatusFulltext not available

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