Breaking the news of a diagnosis of motor neurone disease: A national survey of neurologists’ perspectives
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Communication of the diagnosis of MND is daunting for patients and neurologists. This study aimed to establish a knowledge base of current Australian practice of breaking the news of an MND diagnosis, to assess the neurologists' educational and training needs and to compare the feedback obtained from neurologists and patients to international practice guidelines. An anonymous survey of neurologists was undertaken in Australia (2014). 73 neurologists responded to this national survey (50.4% response rate). Nearly 70% of neurologists reported finding it “somewhat to very difficult” communicating the MND diagnosis, and 65% reported feeling moderate to high stress and anxiety at the delivery of diagnosis. Compared to international guidelines, areas for improvement include length of consultation, period of follow up and referral to MND associations. Two-thirds of neurologists were interested in further training to respond to patient's emotions and development of best practice guidelines. This is the first national study to provide a comprehensive insight into the process of delivering the MND diagnosis from the neurologists' perspective and to make comparisons with those of patients and the international guidelines. This study forms the basis for developing protocols to improve communication skills and alleviate the emotional burden associated with breaking bad news.
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Aoun, Samar; Breen, Lauren; Howting, Denise; Edis, R.; Oliver, D.; Henderson, R.; O'connor, M.; Harris, R.; Birks, C. (2015)Our objectives were to identify the experiences of people with MND in receiving the diagnosis and to determine which aspects of breaking this bad news were associated with greater satisfaction with the way the diagnosis ...
Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Diseaseâ€”â€œOur life has changed foreverâ€?O'Connor, M.; Aoun, Samar; Breen, Lauren (2018)Â© 2018 John Wiley & Sons Ltd While the experiences of family members supporting a person with a terminal illness are well documented, less is known about the needs of carers of people with neurological diseases, in ...
Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national surveyAoun, Samar; Breen, Lauren; Oliver, D.; Henderson, R.; Edis, R.; O'Connor, M.; Howting, D.; Harris, R.; Birks, C. (2017)Family carers have a central role in the care and support of people with MND and face the challenges of the disease from diagnosis to progression and the multiple losses of MND, but their support needs are often neglected. ...