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dc.contributor.authorAoun, Samar
dc.contributor.authorBreen, Lauren
dc.contributor.authorEdis, R.
dc.contributor.authorHenderson, R.
dc.contributor.authorOliver, D.
dc.contributor.authorHowting, D.
dc.contributor.authorO'Connor, M.
dc.contributor.authorBirks, C.
dc.date.accessioned2017-01-30T12:07:11Z
dc.date.available2017-01-30T12:07:11Z
dc.date.created2016-07-04T19:30:15Z
dc.date.issued2016
dc.identifier.citationAoun, S. and Breen, L. and Edis, R. and Henderson, R. and Oliver, D. and Howting, D. and O'Connor, M. et al. 2016. Breaking the news of a diagnosis of motor neurone disease: A national survey of neurologists’ perspectives. Journal of Neurosurgical Sciences. 367: pp. 368-374.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/18333
dc.identifier.doi10.1016/j.jns.2016.06.033
dc.description.abstract

Communication of the diagnosis of MND is daunting for patients and neurologists. This study aimed to establish a knowledge base of current Australian practice of breaking the news of an MND diagnosis, to assess the neurologists' educational and training needs and to compare the feedback obtained from neurologists and patients to international practice guidelines. An anonymous survey of neurologists was undertaken in Australia (2014). 73 neurologists responded to this national survey (50.4% response rate). Nearly 70% of neurologists reported finding it “somewhat to very difficult” communicating the MND diagnosis, and 65% reported feeling moderate to high stress and anxiety at the delivery of diagnosis. Compared to international guidelines, areas for improvement include length of consultation, period of follow up and referral to MND associations. Two-thirds of neurologists were interested in further training to respond to patient's emotions and development of best practice guidelines. This is the first national study to provide a comprehensive insight into the process of delivering the MND diagnosis from the neurologists' perspective and to make comparisons with those of patients and the international guidelines. This study forms the basis for developing protocols to improve communication skills and alleviate the emotional burden associated with breaking bad news.

dc.titleBreaking the news of a diagnosis of motor neurone disease: A national survey of neurologists’ perspectives
dc.typeJournal Article
dcterms.source.volume367
dcterms.source.startPage368
dcterms.source.endPage374
dcterms.source.issn0390-5616
dcterms.source.titleJournal of Neurosurgical Sciences
curtin.departmentSchool of Psychology and Speech Pathology
curtin.accessStatusOpen access


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