Curtin University Homepage
  • Library
  • Help
    • Admin

    espace - Curtin’s institutional repository

    JavaScript is disabled for your browser. Some features of this site may not work without it.
    View Item 
    • espace Home
    • espace
    • Curtin Research Publications
    • View Item
    • espace Home
    • espace
    • Curtin Research Publications
    • View Item

    Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?

    187387_65798_Breen_Provisional_published.pdf (255.6Kb)
    Access Status
    Open access
    Authors
    Bentley, B.
    Aoun, Samar
    O'Connor, Moira
    Breen, Lauren
    Chochinov, H.
    Date
    2012
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Bentley, Brenda and Aoun, Samar and O'Connor, Moira and Breen, Lauren J. and Chochinov, Harvey Max. 2012. Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers? BMC Palliative Care. 11: 18.
    Source Title
    BMC Palliative Care
    DOI
    10.1186/1472-684X-11-18
    ISSN
    1472684X
    Remarks

    This article is published under the Open Access publishing model and distributed under the terms of the Creative Commons Attribution License http://creativecommons.org/licenses/by/2.0/ Please refer to the licence to obtain terms for any further reuse or distribution of this work.

    URI
    http://hdl.handle.net/20.500.11937/20951
    Collection
    • Curtin Research Publications
    Abstract

    Background: Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and existential distress at the end of life, has been shown to benefit people dying of cancer and their families. These results may not be transferable to people with MND. The objectives of this study are to assess the feasibility, acceptability and potential effectiveness of dignity therapy to enhance the end of life experience for people with motor neurone disease and their family carers. Methods/design: This is a cross-sectional study utilizing a single treatment group and a pre/post test design. The study population will comprise fifty people diagnosed with MND and their nominated family carers. Primarily quantitative outcomes will be gathered through measures assessed at baseline and at approximately one week after the intervention. Outcomes for participants include hopefulness, spirituality and dignity. Outcomes for family carers include perceived caregiver burden, hopefulness and anxiety/depression. Feedback and satisfaction with the intervention will be gathered through a questionnaire. Discussion: This detailed research will explore if dignity therapy has the potential to enhance the end of life experience for people with MND and their family carers, and fill a gap for professionals who are called on to address the spiritual, existential and psychosocial needs of their MND patients and families.

    Related items

    Showing items related by title, author, creator and subject.

    • Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease
      Bentley, Brenda; O’ Connor, Moira; Breen, Lauren; Kane, Robert (2014)
      BACKGROUND: Dignity therapy is a brief psychotherapy that has been shown to enhance the end of life experience. Dignity therapy often involves family carers to support patients weakened by illness and family carers are ...
    • Feasibility, Acceptability, and Potential Effectiveness of Dignity Therapy for People with Motor Neurone Disease
      Bentley, Brenda; O'Connor, Moira; Kane, Robert; Breen, Lauren (2014)
      Background: Motor neurone disease (MND) practice guidelines suggest developing interventions that will promote hope, meaning, and dignity to alleviate psychological distress, but very little research has been done. This ...
    • A Narrative Review of Dignity Therapy Research
      Bentley, B.; O'Connor, Moira; Shaw, J.; Breen, Lauren (2017)
      Introduction: Dignity therapy is an end-of-life psychological intervention that focuses on the creation of a legacy document to alleviate end-of-life distress. Dignity therapy is based on an empirical model of dignity at ...
    Advanced search

    Browse

    Communities & CollectionsIssue DateAuthorTitleSubjectDocument TypeThis CollectionIssue DateAuthorTitleSubjectDocument Type

    My Account

    Admin

    Statistics

    Most Popular ItemsStatistics by CountryMost Popular Authors

    Follow Curtin

    • 
    • 
    • 
    • 
    • 

    CRICOS Provider Code: 00301JABN: 99 143 842 569TEQSA: PRV12158

    Copyright | Disclaimer | Privacy statement | Accessibility

    Curtin would like to pay respect to the Aboriginal and Torres Strait Islander members of our community by acknowledging the traditional owners of the land on which the Perth campus is located, the Whadjuk people of the Nyungar Nation; and on our Kalgoorlie campus, the Wongutha people of the North-Eastern Goldfields.