Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?
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Background: Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and existential distress at the end of life, has been shown to benefit people dying of cancer and their families. These results may not be transferable to people with MND. The objectives of this study are to assess the feasibility, acceptability and potential effectiveness of dignity therapy to enhance the end of life experience for people with motor neurone disease and their family carers. Methods/design: This is a cross-sectional study utilizing a single treatment group and a pre/post test design. The study population will comprise fifty people diagnosed with MND and their nominated family carers. Primarily quantitative outcomes will be gathered through measures assessed at baseline and at approximately one week after the intervention. Outcomes for participants include hopefulness, spirituality and dignity. Outcomes for family carers include perceived caregiver burden, hopefulness and anxiety/depression. Feedback and satisfaction with the intervention will be gathered through a questionnaire. Discussion: This detailed research will explore if dignity therapy has the potential to enhance the end of life experience for people with MND and their family carers, and fill a gap for professionals who are called on to address the spiritual, existential and psychosocial needs of their MND patients and families.
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Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone diseaseBentley, Brenda; O’ Connor, Moira; Breen, Lauren; Kane, Robert (2014)BACKGROUND: Dignity therapy is a brief psychotherapy that has been shown to enhance the end of life experience. Dignity therapy often involves family carers to support patients weakened by illness and family carers are ...
Feasibility, Acceptability, and Potential Effectiveness of Dignity Therapy for People with Motor Neurone DiseaseBentley, Brenda; O'Connor, Moira; Kane, Robert; Breen, Lauren (2014)Background: Motor neurone disease (MND) practice guidelines suggest developing interventions that will promote hope, meaning, and dignity to alleviate psychological distress, but very little research has been done. This ...
Bentley, B.; O'Connor, Moira; Shaw, J.; Breen, Lauren (2017)Introduction: Dignity therapy is an end-of-life psychological intervention that focuses on the creation of a legacy document to alleviate end-of-life distress. Dignity therapy is based on an empirical model of dignity at ...