Feasibility, Acceptability, and Potential Effectiveness of Dignity Therapy for People with Motor Neurone Disease
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Background: Motor neurone disease (MND) practice guidelines suggest developing interventions that will promote hope, meaning, and dignity to alleviate psychological distress, but very little research has been done. This study begins to address this need by exploring the use of dignity therapy with people with MND. Dignity therapy is a brief psychotherapy that promotes hope, meaning and dignity, and enhances the end of life for people with advanced cancer. The aims of this study are to assess the feasibility, acceptability, and potential effectiveness of dignity therapy for people with MND. Methods/design: This cross-sectional feasibility study used a one-group pre-test post-test design with 29 people diagnosed with MND. Study participants completed the following self-report questionnaires: Herth Hope Index, FACIT-sp, Patient Dignity Inventory, ALS Assessment Questionnaire, ALS Cognitive Behavioural Screen, and a demographic and health history questionnaire. Acceptability was measured with a 25-item feedback questionnaire. Feasibility was assessed by examining the length of time taken to complete dignity therapy and how symptoms common in MND affected the intervention. Generalised linear mixed models and reliable change scores were used to analyse the data.Results: There were no significant pre-test post-test changes for hopefulness, spirituality or dignity on the group level, but there were changes in hopefulness on the individual level. The results of the feedback questionnaire indicates dignity therapy is highly acceptable to people with MND, who report benefits similar to those in the international randomised controlled trial on dignity therapy, a population who primarily had end-stage cancer. Benefits include better family relationships, improved sense of self and greater acceptance. Dignity therapy with people with MND is feasible if the therapist can overcome time and communication difficulties. Conclusions: Dignity therapy for people with MND is feasible and acceptable. Further research is warranted to explore its ability to diminish distress.
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Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone diseaseBentley, Brenda; O’ Connor, Moira; Breen, Lauren; Kane, Robert (2014)BACKGROUND: Dignity therapy is a brief psychotherapy that has been shown to enhance the end of life experience. Dignity therapy often involves family carers to support patients weakened by illness and family carers are ...
Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?Bentley, B.; Aoun, Samar; O'Connor, Moira; Breen, Lauren; Chochinov, H. (2012)Background: Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in ...
Dignity therapy: a psychotherapeutic intervention to enhance the end of life experience for people with Motor Neurone Disease and their family carersBentley, Brenda (2014)Background: Dignity therapy has not been tested in people with MND and their families. Methods: This cross-sectional feasibility study used a one-group pre/post-test design with 29 people with MND and 18 family carers. ...