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    Accuracy and completeness of patient pathways – the benefits of national data linkage in Australia

    228612_163139_Accuracy_and_completeness_90008.pdf (537.5Kb)
    Access Status
    Open access
    Authors
    Boyd, James
    Randall, Sean
    Ferrante, Anna
    Bauer, Jacqui
    McInneny, K.
    Brown, Adrian
    Spilsbury, Katrina
    Gillies, Margo
    Semmens, James
    Date
    2015
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Boyd, J. and Randall, S. and Ferrante, A. and Bauer, J. and McInneny, K. and Brown, A. and Spilsbury, K. et al. 2015. Accuracy and completeness of patient pathways – the benefits of national data linkage in Australia. BMC Health Services Research. 15: 312 (8 p.).
    Source Title
    BMC Health Services Research
    DOI
    10.1186/s12913-015-0981-2
    ISSN
    1472-6963
    School
    Centre for Population Health Research
    Remarks

    This open access article is distributed under the Creative Commons license http://creativecommons.org/licenses/by/4.0/

    URI
    http://hdl.handle.net/20.500.11937/33607
    Collection
    • Curtin Research Publications
    Abstract

    Background - The technical challenges associated with national data linkage, and the extent of cross-border population movements, are explored as part of a pioneering research project. The project involved linking state-based hospital admission records and death registrations across Australia for a national study of hospital related deaths. Methods - The project linked over 44 million morbidity and mortality records from four Australian states between 1st July 1999 and 31st December 2009 using probabilistic methods. The accuracy of the linkage was measured through a comparison with jurisdictional keys sourced from individual states. The extent of cross-border population movement between these states was also assessed. Results - Data matching identified almost twelve million individuals across the four Australian states. The percentage of individuals from one state with records found in another ranged from 3-5 %. Using jurisdictional keys to measure linkage quality, results indicate a high matching efficiency (F measure 97 to 99 %), with linkage processing taking only a matter of days. Conclusions - The results demonstrate the feasibility and accuracy of undertaking cross jurisdictional linkage for national research. The benefits are substantial, particularly in relation to capturing the full complement of records in patient pathways as a result of cross-border population movements. The project identified a sizeable ‘mobile’ population with hospital records in more than one state. Research studies that focus on a single jurisdiction will under-enumerate the extent of hospital usage by individuals in the population. It is important that researchers understand and are aware of the impact of this missing hospital activity on their studies. The project highlights the need for an efficient and accurate data linkage system to support national research across Australia.

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    • Improving the Estimation of Risk-Adjusted Grouped Hospital Standardized Mortality Ratios Using Cross-Jurisdictional Linked Administrative Data: A Retrospective Cohort Study.
      Spilsbury, Katrina; Rosman, D.; Alan, J.; Ferrante, A.; Boyd, J.; Semmens, J. (2017)
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    • Data linkage infrastructure for cross-jurisdictional health-related research in Australia
      Boyd, James; Ferrante, Anna; O'Keefe, C.; Bass, A.; Randall, Sean; Semmens, James (2012)
      Background: The Centre for Data Linkage (CDL) has been established to enable national and cross-jurisdictional health-related research in Australia. It has been funded through the Population Health Research Network (PHRN), ...
    • Cross-border hospital use: analysis using data linkage across four Australian states
      Spilsbury, Katrina; Rosman, D.; Alan, J.; Boyd, James; Ferrante, Anna; Semmens, James (2015)
      Objective: To determine the quality and effectiveness of national data linkage capacity by performing a proof-of-concept project investigating cross-border hospital use and hospital-related deaths. Design, participants ...
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