Curtin University Homepage
  • Library
  • Help
    • Admin

    espace - Curtin’s institutional repository

    JavaScript is disabled for your browser. Some features of this site may not work without it.
    View Item 
    • espace Home
    • espace
    • Curtin Research Publications
    • View Item
    • espace Home
    • espace
    • Curtin Research Publications
    • View Item

    Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol

    Access Status
    Open access via publisher
    Authors
    Bergstraesser, E.
    Zimmermann, K.
    Eskola, K.
    Luck, P.
    Ramelet, Anne-Sylvie
    Cignacco, E.
    Date
    2015
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Bergstraesser, E. and Zimmermann, K. and Eskola, K. and Luck, P. and Ramelet, A. and Cignacco, E. 2015. Paediatric end-of-life care needs in Switzerland: Current practices, and perspectives from parents and professionals. A study protocol. Journal of Advanced Nursing. 71 (8): pp. 1940-9147.
    Source Title
    Journal of Advanced Nursing
    DOI
    10.1111/jan.12650
    ISSN
    0309-2402
    School
    School of Nursing and Midwifery
    URI
    http://hdl.handle.net/20.500.11937/3947
    Collection
    • Curtin Research Publications
    Abstract

    Aim: To present a protocol for a multi-phase study about the current practice of end-of-life care in paediatric settings in Switzerland. Background: In Switzerland, paediatric palliative care is usually provided by teams, who may not necessarily have specific training. There is a lack of systematic data about specific aspects of care at the end of a child's life, such as symptom management, involvement of parents in decision-making and family-centred care and experiences and needs of parents, and perspectives of healthcare professionals. Design: This retrospective nationwide multicentre study, Paediatric End-of-LIfe CAre Needs in Switzerland (PELICAN), combines quantitative and qualitative methods of enquiry. Methods: The PELICAN study consists of three observational parts, PELICAN I describes practices of end-of-life care (defined as the last 4 weeks of life) in the hospital and home care setting of children (0-18 years) who died in the years 2011-2012 due to a cardiac, neurological or oncological disease, or who died in the neonatal period. PELICAN II assesses the experiences and needs of parents during the end-of-life phase of their child. PELICAN III focuses on healthcare professionals and explores their perspectives concerning the provision of end-of-life care. Conclusion: This first study across Switzerland will provide comprehensive insight into the current end-of-life care in children with distinct diagnoses and the perspectives of affected parents and health professionals. The results may facilitate the development and implementation of programmes for end-of-life care in children across Switzerland, building on real experiences and needs.

    Related items

    Showing items related by title, author, creator and subject.

    • Supportive and palliative care needs of families of children who die from cancer: an Australian study
      Monterosso, Leanne; Kristjanson, Linda (2008)
      Objective: To obtain feedback from parents of children who died from cancer about their understanding of palliative care, their experiences of palliative and supportive care received during their child's illness, and their ...
    • End-of-life decisions and practices as viewed by health professionals in pediatric critical care: A European survey study
      Zanin, A.; Brierley, J.; Latour, Jos ; Gawronski, O. (2023)
      Background and Aim: End-of-Life (EOL) decision-making in paediatric critical care can be complex and heterogeneous, reflecting national culture and law as well as the relative resources provided for healthcare. This study ...
    • European neonatal intensive care nursing research priorities: An e-delphi study
      Wielenga, J.; Tume, L.; Latour, Jos; van den Hoogen, A. (2015)
      Objective: This study aimed to identify and prioritise neonatal intensive care nursing research topics across Europe using an e-Delphi technique. Design: An e-Delphi technique with three questionnaire rounds was performed. ...
    Advanced search

    Browse

    Communities & CollectionsIssue DateAuthorTitleSubjectDocument TypeThis CollectionIssue DateAuthorTitleSubjectDocument Type

    My Account

    Admin

    Statistics

    Most Popular ItemsStatistics by CountryMost Popular Authors

    Follow Curtin

    • 
    • 
    • 
    • 
    • 

    CRICOS Provider Code: 00301JABN: 99 143 842 569TEQSA: PRV12158

    Copyright | Disclaimer | Privacy statement | Accessibility

    Curtin would like to pay respect to the Aboriginal and Torres Strait Islander members of our community by acknowledging the traditional owners of the land on which the Perth campus is located, the Whadjuk people of the Nyungar Nation; and on our Kalgoorlie campus, the Wongutha people of the North-Eastern Goldfields.