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dc.contributor.authorEpstein, A.
dc.contributor.authorWhitehouse, A.
dc.contributor.authorWilliams, K.
dc.contributor.authorMurphy, N.
dc.contributor.authorLeonard, H.
dc.contributor.authorDavis, E.
dc.contributor.authorReddihough, D.
dc.contributor.authorDowns, Jennepher
dc.date.accessioned2017-11-24T05:25:21Z
dc.date.available2017-11-24T05:25:21Z
dc.date.created2017-11-24T04:48:42Z
dc.date.issued2017
dc.identifier.citationEpstein, A. and Whitehouse, A. and Williams, K. and Murphy, N. and Leonard, H. and Davis, E. and Reddihough, D. et al. 2017. Parent-observed thematic data on quality of life in children with autism spectrum disorder. Autism. 23 (1): pp. 71-80.
dc.identifier.urihttp://hdl.handle.net/20.500.11937/58358
dc.identifier.doi10.1177/1362361317722764
dc.description.abstract

Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all, 21 parents (19 mothers, 2 fathers) of children with autism spectrum disorder (aged 6–17 years) participated in a qualitative study to discuss their child’s quality of life. Thematic analysis using a grounded theory framework was conducted and 10 domains emerged in relation to health and well-being, capacity to perform and develop skills in daily life, and connections with the community and environment. Unique aspects of quality of life included varying levels of social desire, consistency of routines, and time spent in nature and the outdoors, which are not comprehensively captured in existing measures. Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder and support the development of a new measure for this population.

dc.titleParent-observed thematic data on quality of life in children with autism spectrum disorder
dc.typeJournal Article
dcterms.source.issn1461-7005
dcterms.source.titleAutism
curtin.note

Epstein, A. and Whitehouse, A. and Williams, K. and Murphy, N. and Leonard, H. and Davis, E. and Reddihough, D. et al. 2017. Parent-observed thematic data on quality of life in children with autism spectrum disorder. Autism. [In Press] Copyright © 2017 The Authors. Reprinted by permission of SAGE Publications

curtin.departmentSchool of Physiotherapy and Exercise Science
curtin.accessStatusOpen access


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