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    Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

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    Access Status
    Open access
    Authors
    Downs, Jennepher
    Jacoby, P.
    Leonard, H.
    Epstein, A.
    Murphy, N.
    Davis, E.
    Reddihough, D.
    Whitehouse, A.
    Williams, K.
    Date
    2018
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Downs, J. and Jacoby, P. and Leonard, H. and Epstein, A. and Murphy, N. and Davis, E. and Reddihough, D. et al. 2018. Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure. Quality of Life Research. 28: pp. 783-794.
    Source Title
    Quality of Life Research.
    DOI
    10.1007/s11136-018-2057-3
    ISSN
    1573-2649
    School
    School of Physiotherapy and Exercise Science
    Remarks

    This is a post-peer-review, pre-copyedit version of an article published in Quality of Life Research. The final authenticated version is available online at: http://doi.org/10.1007/s11136-018-2057-3

    URI
    http://hdl.handle.net/20.500.11937/71728
    Collection
    • Curtin Research Publications
    Abstract

    PURPOSE: Children with intellectual disability encounter daily challenges beyond those captured in current quality of life measures. This study evaluated a new parent-report measure for children with intellectual disability, the Quality of Life Inventory-Disability (QI-Disability). METHODS: QI-Disability was administered to 253 primary caregivers of children (aged 5-18 years) with intellectual disability across four diagnostic groups: Rett syndrome, Down syndrome, cerebral palsy or autism spectrum disorder. Exploratory and confirmatory factor analyses were conducted and goodness of fit of the factor structure assessed. Associations between QI-Disability scores, and diagnostic and age groups were examined with linear regression. RESULTS: Six domains were identified: physical health, positive emotions, negative emotions, social interaction, leisure and the outdoors, and independence. Goodness-of-fit statistics were satisfactory and similar for the whole sample and when the sample was split by ability to walk or talk. On 100 point scales and compared to Rett syndrome, children with Down syndrome had higher leisure and the outdoors (coefficient 10.6, 95% CI 3.4,17.8) and independence (coefficient 29.7, 95% CI 22.9, 36.5) scores, whereas children with autism spectrum disorder had lower social interaction scores (coefficient -?12.8, 95% CI -?19.3, -?6.4). Scores for positive emotions (coefficient -?6.1, 95% CI -?10.7, -?1.6) and leisure and the outdoors (coefficient 5.4, 95% CI -?10.6, -?0.1) were lower for adolescents compared with children. CONCLUSIONS: Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability. It has the potential to allow clearer identification of support needs and measure responsiveness to interventions.

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      OBJECTIVE: To assess responsiveness and reproducibility using the estimates of test-retest reliability for the Quality of Life Inventory-Disability (QI-Disability), accounting for changes in child health and parental ...
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