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    The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress

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    Access Status
    Open access
    Authors
    Whitehouse, A.J.O.
    Jacoby, P.
    Reddihough, D.
    Leonard, H.
    Williams, K.
    Downs, Jennepher
    Date
    2021
    Type
    Journal Article
    
    Metadata
    Show full item record
    Citation
    Whitehouse, A.J.O. and Jacoby, P. and Reddihough, D. and Leonard, H. and Williams, K. and Downs, J. 2021. The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress. Quality of Life Research. 30 (10): pp. 2875-2885.
    Source Title
    Quality of Life Research
    DOI
    10.1007/s11136-021-02855-9
    ISSN
    0962-9343
    Faculty
    Faculty of Health Sciences
    School
    Curtin School of Allied Health
    Funding and Sponsorship
    http://purl.org/au-research/grants/nhmrc/1103745
    http://purl.org/au-research/grants/nhmrc/1077966
    http://purl.org/au-research/grants/nhmrc/1117105
    Remarks

    This is a post-peer-review, pre-copyedit version of an article published inQuality of Life Research. The final authenticated version is available online at: http://doi.org/10.1007/s11136-021-02855-9.

    URI
    http://hdl.handle.net/20.500.11937/86905
    Collection
    • Curtin Research Publications
    Abstract

    Purpose: The measurement of quality of life (QOL) in children with intellectual disability often relies upon proxy report via caregivers. The current study investigated whether caregiver psychological distress mediates or moderates the effects of impairment on their ratings of QOL in children with intellectual disability.

    Methods: Caregivers of 447 children with an intellectual disability reported their child’s day-to-day functioning, their own psychological distress using the Kessler Psychological Distress Scale, and the Quality of Life Inventory-Disability (QI-Disability), a measure of QOL for proxy report of a child’s observable behaviours that indicate quality of life. Linear regression was used to assess the effects of the child’s functional abilities on their QI-Disability score and causal mediation analysis to estimate the extent to which these effects were mediated by caregivers’ psychological distress.

    Results: A minority of caregivers (n = 121, 27.1%) reported no psychological distress. Lower day-to-day functional abilities, such as being fully dependent on others to manage their personal needs were associated with lower total QOL scores. There was no significant mediation effect of caregiver psychological distress on the association between child functioning and total QOL scores. Moderation analyses revealed small and largely nonsignificant interaction coefficients, indicating that caregiver psychological distress did not influence the strength of the relationship between child functioning and total QOL scores.

    Conclusion: Caregiver psychological distress did not mediate or moderate the relationship between the level of functional abilities and QOL in children with intellectual disability. QI-Disability measured observable child behaviours which may reduce the influence of caregiver factors on the accurate measure of QOL for children with intellectual disability.

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    • Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability
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      OBJECTIVE: To assess responsiveness and reproducibility using the estimates of test-retest reliability for the Quality of Life Inventory-Disability (QI-Disability), accounting for changes in child health and parental ...
    • Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure
      Downs, Jennepher; Jacoby, P.; Leonard, H.; Epstein, A.; Murphy, N.; Davis, E.; Reddihough, D.; Whitehouse, A.; Williams, K. (2018)
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      Reddihough, D.; Leonard, H.; Jacoby, P.; Kim, R.; Epstein, A.; Murphy, N.; Reid, S.; Whitehouse, A.; Williams, K.; Downs, Jennepher (2021)
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