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    Diagnosing rare diseases: A sociotechnical approach to the design of complex work systems

    Access Status
    Fulltext not available
    Authors
    Hay, Georgia
    Klonek, Florian
    Parker, Sharon
    Date
    2020
    Type
    Journal Article
    
    Metadata
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    Citation
    Hay, G.J. and Klonek, F.E. and Parker, S.K. 2020. Diagnosing rare diseases: A sociotechnical approach to the design of complex work systems. Applied Ergonomics. 86: Article No. 103095.
    Source Title
    Applied Ergonomics
    DOI
    10.1016/j.apergo.2020.103095
    ISSN
    0003-6870
    Faculty
    Faculty of Business and Law
    School
    Future of Work Institute
    Funding and Sponsorship
    http://purl.org/au-research/grants/arc/FL160100033
    URI
    http://hdl.handle.net/20.500.11937/79822
    Collection
    • Curtin Research Publications
    Abstract

    © 2020 Elsevier Ltd

    How do complex healthcare systems that are organised into distinct speciality areas achieve effective patient care transitions when patients present with a rare constellation of symptoms that affect multiple body systems? How do these patients challenge existing ways of organising tasks, clinical activities, and interdependent responsibilities? The current study applies a sociotechnical systems perspective to understand how these complex work design and care-related challenges were resolved by the Western Australian Undiagnosed Diseases Program. We conducted a two-year longitudinal, qualitative study of this program, conceived to improve the diagnosis and management of patients with rare, multi-system disorders by piloting a re-design of the local system of diagnostic work. Specifically, we (1) compared the configuration and effectiveness of the old system and the re-designed system; and (2) analysed the process of system re-design (i.e., the design, implementation, and operation of the program) in order to understand the factors that contributed to – or inhibited – its success. We discuss the theoretical and practical implications of our findings for effectively re-designing complex, trans-organisational work systems.

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